Shouldn’t all young deaf children and their families have the right to a Radio Aid?

Emma

Emma Fraser- Teacher of the Deaf

Everyday life can be busy and noisy with family gatherings, trips out to playgrounds and activity centres and frequent journeys in the car and the buggy. Having two children myself I know how loud we all can be particularly when my six siblings and their children come round. In fact recent research indicates that young children can spend up to 25% of their day in noisy environments. So knowing what we know about how important it is for young children to hear spoken language in order to develop good communication and language and how babies have to learn how to be good listeners, why can’t all deaf pre-school children be considered for a radio aid at the same time as they are fitted for a hearing aid? 

We think every family should have the right to try a radio aid, from an early age, so they can see if it would work well for them. Our research shows that it can have big benefits. If you would like to try one, you can talk to your audiologist and Teacher of the Deaf about radio aids. As soon as your child has hearing aids or a cochlear implant, discuss options with your Teacher of the Deaf about trying out a radio aid at home. It may take some getting used to and you don’t need to use it all the time, but when you think about the times your child is in a noisy place or behind you in the car, it will be then that your child could really benefit from hearing your voice clearly.

So here are some things you may want to consider when using a radio aid with a baby or toddler.

  • Think about the best time to use the radio aid for you and your child, it may be in the car, when you are sharing a book with a sibling, or playing with your child at toddler group. Take a look at this short video to see how a family used a radio aid to help communication.
  • All the family can use the radio aid, so pass it around when another family member is interacting with your child
  • Radio aids use up battery power so you will need to change the batteries in your child’s hearing aids more frequently
  • Place the microphone carefully. About 15cm from your mouth is best and avoid wearing anything that will knock against it as the sound will travel straight into your child’s ears.
  • Don’t forget to use the mute button, there are some conversations your child doesn’t need to hear.

Unfortunately, radio aids are not always available for use in the home or for pre-school deaf children. We’re campaigning for them to be more widely available – local authorities will need to ensure that services have the resources to fund, maintain and monitor the equipment.

Remember the best communication happens in a quiet environment, when you are close to you child, they can see your face and you are sharing experiences, but when this isn’t possible consider trying a radio aid. If you’d like more information about radio aids, take a look at our website.

 

My experience of Labour party conference…

Erin 1

Erin McKay

Hello, I am Erin and I’m from Wiltshire. I have a hearing loss and wear two hearing aids. I am currently doing A Level History, Philosophy and English Literature. I attended the Labour Party Conference and I’d like to tell you a bit about my experience.

On Sunday 24 September I got on the train to Brighton. It took a little under four hours to get there. I was on my way to the Labour Party conference where I had 8 meetings lined up to talk about three campaigns that the NDCS are doing. They are Listen Up to improve children’s audiology services, Right to Sign, putting British Sign Language (BSL) in schools as a GCSE and PIP’d Off, about Personal Independence Payments, and the difficulties that deaf people have in getting them. I talked about the Right to Sign campaign as it was the one I helped create with the last Youth Advisory Board.

On the Monday, Brighton was quite rainy and we arrived at the hotel at around 10am to get ready for our first meeting, it was with Sharon Hodgson, the MP for Sunderland West. She is the Shadow Minister for Public Health. She was really nice and we talked about Listen Up, Right to Sign and PIP.

Erin and Sharon

While we were talking with her, the next MP arrived – Alex Cunningham of Stockton. He was also really nice. He gave us some ideas of what to do with the campaigns and who to talk to about different bits. He agreed to ask his local hospital to sign up to the inspections for Listen Up!

Our next meeting was with Liz Twist who is the new MP for Blaydon. We talked about Listen Up! and Right to Sign. Afterwards we met Stephanie Peacock who is also a new MP, for Barnsley. She agreed to ask her local hospital to be part of the inspection process and we also talked about Right to Sign and having Teachers of the Deaf in Schools. We then had a break for lunch and walked around the exhibitions.

After lunch, we saw Jeremy Corbyn and John McDonnell. I managed to get my picture taken with both of them. Our next meeting was with Dawn Butler, the MP who signed a question in parliament. We talked to her about Right to Sign, and she seemed surprised to see that I couldn’t sign. She had already done most of what we wanted to ask her to do, and she was happy to talk about other things to help our campaigns. Next was Helen Goodman who had done a lot of work already with the National Deaf Children’s Society and she was very happy to help us. We talked about Right to Sign, Listen Up and PIP.

Erin labour

Our last meeting was with Tracy Brabin, who was friends with Jo Cox, who I wrote a bit about loneliness for. We also talked about Listen Up and Right to Sign. I had a really good time and would like to do it again.

The best bit of my day was seeing the taxi drivers showing their support for the Uber ban in London by beeping their horns. It went on for about 20 minutes and was really loud! I also liked meeting all the different MPs. Top tips from me for conference are: to share – talk to the MPs and ask questions if you don’t understand something; they are ordinary people.

Growing up in a mainstream school

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Emily Meacher (aged 4 years) Policy and Campaigns Support Assistant

Jake’s recent blog got me thinking about my own personal experience at primary school, and how I wasn’t alone in these experiences. And so below are some random reflections of my time at Codicote primary school.

 

I was the only deaf kid in school- children used to say to me ‘why are you death?’ and I would have to try and explain at 6 years old how I am deaf and not actually dead.

I used the deaf card (I started young!) to get out of recorder sessions- I couldn’t bear the noise (can anyone?) and felt elated when I was let off.

Children were curious about how my radio aid worked, so the teacher had the bright idea of sending me out into the playground where everyone watched me. The teacher would say something into the aid but I didn’t understand a word. I felt a bit miffed about being sent out whilst the whole class gawped through the window.

I used to take part in school plays, and didn’t hear or understand any of the songs- I would just move my mouth and pretend to go along with it.

I used to go to my friends’ sleepovers and whilst a lot of the kids were up late chatting in the dark, I would be asleep. I would wake up and see the kids playing with my hearing aids, trying to put them into their ears out of curiosity.

I had a best friend Claire, who I am still best friends with to this day whose mother, told Claire she was worried about her hanging out with me- as her voice had started to get ‘lazy’- and that she was starting to sound like me! Of course, Claire didn’t listen thankfully.

Although there were times when I struggled, overall I received good educational support in school and if it wasn’t for the support there, I don’t think I’d have passed the entrance exam (this has now changed -they no longer have an entrance exam) to get into Mary Hare, secondary school. It was at Mary Hare that I developed my deaf identity.

Since my time working at the National Deaf Children’s Society, it pains me to think that some deaf children out there do not get the same support I had growing up. Some deaf children are coping, rather than thriving. This needs to change – we are working hard to challenge proposals to close resource bases and reduce support – one example being in Manchester. Hazel, our Regional Director for the North West and Sally, our Policy and Campaigns Officer fought hard alongside passionate parents, and in the end we managed to reduce the amount of budget cut to the service. Not only that, but we also managed to save one of the two resource bases under threat. Great news!

If you want to get involved in campaigns like this, then join with me and the Policy and Campaigns team by signing up to our Campaigns Network here: http://www.ndcs.org.uk/help_us/campaigns/campaign_with_us/campaign_network.html

 

General election 2017: Uninspected audiology services

Beccy Forrow Policy and Campaigns Officer

Beccy Forrow, Policy and Campaigns Adviser

Would you send your child to a school that hadn’t been inspected by Ofsted? Would you ride in a car that didn’t conform to industry safety standards? Would you eat in a restaurant that refused to take part in food hygiene inspections? All questions I’d answer no to.

But this is what is being allowed to happen with children’s audiology services in England. Only 15% of services have been inspected and achieved a high enough standard to become ‘accredited’. This leaves the majority of services uninspected – with deaf children, young people and their families having no idea whether they are attending a great service or one that is poor quality and unsafe.

Considering that an NHS report in 2014 found that one third of audiology services were failing to meet critical NHS quality standards, with no incentive to improve, it’s unlikely that many will now be providing a better service. This matters because hearing is critical to a child’s development of language and learning. Early diagnosis and support reduces the risk of delays in language, educational, social and emotional development. But this support needs to be consistently of good quality.

Earlier this year we created an audiology map so that parents could check if their local service had reached a high enough standard to be accredited. However, of 134 services, 40 have so far refused to take part in the inspection scheme at all. Many others have registered for the scheme but not moved closer to an inspection visit over the course of the last few years.

We’re calling on the next Government to make it compulsory for all children’s audiology services in England to take part in the inspections so that parents can be confident that they are fit for purpose. As the inspections cost money and can be time consuming to prepare for, it’s vital that the Government levels the playing field by making the inspections mandatory for all services. Audiology services for deaf children won’t get better on their own.

If any general election candidates come to your door, be sure to ask them about the quality of children’s audiology services. We’ve got some other questions you might like to ask them on our election web page.

Right to Sign Campaign

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Sophia James, Senior Participation Officer (Campaigns) National Deaf Children’s Society

After a lively debate at a residential event in 2015, a group of 16 deaf young people voted to campaign about British Sign Language. Now, 18 months later, following our charity’s largest ever consultation of young people, their campaign for a British Sign Language (BSL) GCSE and Scottish National 4/5 in schools has finally launched.

Our board are campaigning for the Right to Sign and we want you to give your support to this campaign. To explain what the campaign is about, Beth and Aliko have filmed this video.

There are lots of reasons to get behind this campaign and Frankie, from the YAB, explains in her vlog why she thinks it’s a good idea for young people to have access to learning sign language.

Here’s how you can get involved:

Read our report

Sign our petition

There is also a different action for each country in the UK, which you can find here.

So thanks for your support and let’s make the #righttosign a reality in schools.

General Election 2017. Deaf young people matter.

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Martin McLean, Education and Training Policy Advisor (Post-14), National Deaf Children’s Society

Less than half of young people aged 18-24 are expected to vote on June 8th. Personally, I think this is a tragedy as it means that politicians may be less focused on trying to win young people over because this will not be the key to winning elections. It can be argued that policies on housing, benefits or higher education, for example, might be different if more young people voted.

We at the National Deaf Children’s Society want to make sure that the needs of young people are high on the agenda. We have some key asks for each of the parties to help ensure deaf young people have bright futures. For this year’s general election they are:

    1. Ensure deaf young people receive access to specialist careers advice. Imagine as a deaf young person thinking about what you want to do in the future but you did not know you had rights under the Equality Act or that there was funding for communication support and technology in the workplace (Access to Work). Sadly, this is the reality for many deaf young people and we believe it influences their subject choices at school and college. We want all deaf young people to have access to specialist careers advice so that they are better informed to make choices about their futures.
    2.  Revamp the Access to Work employment support scheme. As a user of the Access to Work I can say I probably could not do my job without it – it pays for the communication support I need to access meetings and training. However, when applying for the first time you will need to very clear about what support and how much of it you need. We don’t believe the application process is friendly for young people and would like to see specialist advice from dedicated champions when they apply for the first time, as well as support that it is flexible and tailored to their needs.
    3. Make it easier for deaf young people to complete apprenticeships. The main political parties are keen on apprenticeships. So are we. High-quality apprenticeships can be a good way of ensuring deaf young people gain vital work experience alongside achieving qualifications. We believe the funding system for additional support on apprenticeships is currently unsatisfactory and needs to be improved and simplified.

Help us put the needs of deaf young people on the agenda by asking the parliamentary candidates for your area what they would do on the above issues if elected to parliament. Also, if you know any deaf young people over 18, encourage them to register to vote- they do matter!

Election 2017: Education funding and deaf children

Brian_Gale

Brian Gale, Director, Policy and Campaigns

One of the big election hot potatoes is around education funding, with many parents concerned about possible cuts to the money schools get.

But it’s not just schools that are experiencing challenges – services for deaf children and other children with special educational needs and disabilities (SEND) are also under pressure.

It’s true that the Government have protected, and provided some additional SEND funding. But it’s also clear in many areas that this isn’t enough. Too many local authorities have, or are planning to, cut the vital services upon which deaf children rely.

There are various reasons why the government’s ‘protection’ isn’t enough.

  • It doesn’t take into account inflation or increases in wages and pension contributions, so will still constitute a cut for many local authorities in real terms.
  • It also fails to take into account the fact that the number of children and young people with SEND are rising across the board, including deaf children.
  • More children are being placed in special or residential schools, which will be more expensive to the local authority. There’s been a 19% increase in special school places in the last 5 years.
  • New legal duties and policies means that services are expected to do more to ensure more childcare is available for young children and to support deaf young people over 16. Whilst there are positive intentions behind these changes, the extra funding provided has not been enough to meet their ambitions.

To fund the shortfall during the past 3 years, over 75% of local authorities have had to take more than £300million from school budgets to try to meet their legal obligations to children with SEND. Even that has not been sufficient to stop some children with SEND experiencing cuts to the support they receive.

More worrying is a proposal by the Government to stop local authorities using school budgets to meet the needs of an increasing number of disabled children requiring support. This could leave families facing the prospect of cuts to the support their disabled children receive.

We’ve been monitoring and challenging reductions to spending on deaf children’s education across England for the last seven years as part of our Stolen Futures campaign. Many of the parents we work with will be seeking reassurance that the next Government will do more to protect these vital services.

One way the Government could do this is by putting specialist education support services for children and young people with SEND, such as Teachers of the Deaf, onto a statutory footing. This would mean that local authorities would in future have a legal duty to ensure sufficient specialist support is provided. We think that putting these services on a statutory footing will protect them from funding cuts and help make sure that deaf children get the support they need to get a good education.

Do you agree? If so, ask the people standing for election in your area what they will do to protect services for deaf children if they get elected. Will they commit to support a new legal duty on local authorities to provide specialist education services for children and young people with SEND?

Find out more about our election work on our website.