Parliamentary Inquiry into PIP

Sally Etchells, Policy and Campaigns Officer, National Deaf Children’s Society

Have you had a Personal Independence Payment (PIP) assessment? Did you appeal against the decision? Do you have views on what went wrong or what needs to improve? 

If you have, the House of Commons Work and Pensions Select Committee wants to hear from you!

The committee is a powerful group of MPs whose job is to hold the government to account, highlight problems in the system, and make sure the government listens to real people who have been affected by issues such as benefits reform.

The committee has just launched a new inquiry into PIP and Employment Support Allowance (ESA). It is particularly focusing on the assessment stage of the process, but also Mandatory Reconsideration and appeals too.

It is so important that the voices, experiences and situations of deaf young people are heard by the people in power who can actually make a difference.

If you’ve been affected by PIP, we want you to fill out the short form telling MPs exactly what you think is wrong with the system, and how it can be improved for deaf young people.

The deadline for submitting evidence is Friday 10 November. You can find out more about the inquiry and how to submit evidence at this web page:

http://www.parliament.uk/business/committees/committees-a-z/commons-select/work-and-pensions-committee/inquiries/parliament-2017/pip-esa-assessments-17-19/

If you want to provide evidence in a non-written format, you need to contact the committee staff by emailing workpencom@parliament.uk

house of commons

My experience of Labour party conference…

Erin 1

Erin McKay

Hello, I am Erin and I’m from Wiltshire. I have a hearing loss and wear two hearing aids. I am currently doing A Level History, Philosophy and English Literature. I attended the Labour Party Conference and I’d like to tell you a bit about my experience.

On Sunday 24 September I got on the train to Brighton. It took a little under four hours to get there. I was on my way to the Labour Party conference where I had 8 meetings lined up to talk about three campaigns that the NDCS are doing. They are Listen Up to improve children’s audiology services, Right to Sign, putting British Sign Language (BSL) in schools as a GCSE and PIP’d Off, about Personal Independence Payments, and the difficulties that deaf people have in getting them. I talked about the Right to Sign campaign as it was the one I helped create with the last Youth Advisory Board.

On the Monday, Brighton was quite rainy and we arrived at the hotel at around 10am to get ready for our first meeting, it was with Sharon Hodgson, the MP for Sunderland West. She is the Shadow Minister for Public Health. She was really nice and we talked about Listen Up, Right to Sign and PIP.

Erin and Sharon

While we were talking with her, the next MP arrived – Alex Cunningham of Stockton. He was also really nice. He gave us some ideas of what to do with the campaigns and who to talk to about different bits. He agreed to ask his local hospital to sign up to the inspections for Listen Up!

Our next meeting was with Liz Twist who is the new MP for Blaydon. We talked about Listen Up! and Right to Sign. Afterwards we met Stephanie Peacock who is also a new MP, for Barnsley. She agreed to ask her local hospital to be part of the inspection process and we also talked about Right to Sign and having Teachers of the Deaf in Schools. We then had a break for lunch and walked around the exhibitions.

After lunch, we saw Jeremy Corbyn and John McDonnell. I managed to get my picture taken with both of them. Our next meeting was with Dawn Butler, the MP who signed a question in parliament. We talked to her about Right to Sign, and she seemed surprised to see that I couldn’t sign. She had already done most of what we wanted to ask her to do, and she was happy to talk about other things to help our campaigns. Next was Helen Goodman who had done a lot of work already with the National Deaf Children’s Society and she was very happy to help us. We talked about Right to Sign, Listen Up and PIP.

Erin labour

Our last meeting was with Tracy Brabin, who was friends with Jo Cox, who I wrote a bit about loneliness for. We also talked about Listen Up and Right to Sign. I had a really good time and would like to do it again.

The best bit of my day was seeing the taxi drivers showing their support for the Uber ban in London by beeping their horns. It went on for about 20 minutes and was really loud! I also liked meeting all the different MPs. Top tips from me for conference are: to share – talk to the MPs and ask questions if you don’t understand something; they are ordinary people.

There’s a gaping hole in our ability to support our most vulnerable children

Chris Mullen

Chris Mullen, Social Care Policy Advisor

By 2020, in just 3 years’ time councils will be facing a £2 billion funding gap for children’s social care services[1].The figure is eye-watering, but recently a collection of academics, researchers, parliamentarians, practitioners, England’s Children’s Commissioner, but sadly not the new Children’s Minister, gathered at the latest All Party Parliamentary Group on Children to discuss the state of children’s social care services in England. Not one person in the packed committee room disputed this figure, including the Director of the National Children’s Bureau who stated there was a clear crisis in children’s social care funding.

The meeting discussed a survey of 1600 social workers -the vast majority reporting that the bar is becoming higher and higher for children and families to get support by children’s services.[2] It’s hardly surprising.

As my last blog reported, it is only recently that the previous Conservative administration acknowledged the funding crisis in adult social care, with councils now being allowed to raise additional money through ring fenced council tax rises. But why has this not happened in children’s social care?

Is this because children don’t have immediate political power, as ageing or grey voters do, being able to trigger the issuing of P45’s of previous MP’s at the stroke of a pencil at the ballet box? Or is that children’s social care support is perceived by many voters as somehow about undeserving children or that children who receive social care support are in families who should be meeting those children’s needs and not the state?

If in these times of austerity the moral argument has been won to support the needs of our vulnerable elderly population, we must do all we can to persuade our politicians to extend this to children who are equally vulnerable!

Deaf and disabled children are also sometimes supported by children’s social care; but with resources and demand pressures, these children are getting reduced levels of support or are only experiencing social care involvement at the point where preventing abuse and neglect occurs- rather than the safety net support of services to help children and families. Sadly this reinforces the view of those children and families as being undeserving.

This is to be expected where the law is too narrow, and local authorities are not legally required to provide early intervention and early help services to children and families. This is despite mounting evidence showing that if targeted well, these services can prevent more costly state intervention later on[3]. With limited resources, many local authorities are striving to innovate to meet rising demand for services, but ultimately have to intervene to protect children who have suffered significant harm or at risk of immediate harm.

Sometimes when a crisis occurs, new or alternative ways of thinking emerge. In 1946 Britain was broke and devastated by WW2, yet during this time of austerity it took the wisdom of a few to create the NHS which despite its problems, is fiercely supported. We need a similar revolution now. Investing in a safety net of support for all children and families as a democratic right will reap benefits for the whole of society –and that includes those who disagree with such a measure who cannot escape living alongside children and families! And also as a final thought, weren’t we all once children?

Previous Blog

https://ndcscampaigns.com/category/social-care/

[1] https://www.local.gov.uk/about/news/councils-face-2-billion-funding-gap-support-vulnerable-children-2020

[2] https://www.cypnow.co.uk/cyp/news/2004211/child-protection-thresholds-rising-due-to-budget-pressures

[3] https://www.ncb.org.uk/resources-publications/resources/no-good-options-report-inquiry-childrens-social-care-england

“Involving deaf young people in the technology they use is the best way to make sure it meets their needs for the future”

Lucy Read

Lucy Read, Head of Children and Young People Participation

Technology has come a long way over the past couple of decades. Those of you who can remember dial-up networks, floppy discs and MSN will be well aware of how much technology has changed over time.

If you have absolutely no idea what I’m wittering on about ­– that is proof of just how quickly technology moves on. What was current one minute and everyone was using can quickly change and adapt with people’s changing needs.

But how often do deaf young people get to share their needs, wants and wishes for the technology they use or might want? Our experience is not very often.

We are hoping to change this by launching an exciting new Design Your Own Tech competition for young people aged 12–18; giving deaf young people across the UK the chance to showcase their tech talents.

We created the competition to raise awareness of the daily challenges the UK’s 50,000 deaf youngsters face, and of how technology can help them to overcome these.

Budding deaf designers aged 12–18 have until 13 October to submit their innovative ideas for the tech of the future.

Two lucky winners will get to present their ideas to product manufacturers and those with the power to make their designs a reality. They will also get a prize for their school, and can choose from an iPad, VR headset or Amazon vouchers.

For more information and to enter the competition, go to www.buzz.org.uk.

tech-banner

Right to Sign campaign update: Minister says no

Ian_Noon

Ian Noon, Head of Policy and Research, National Deaf Children’s Society

Earlier this year, the National Deaf Children’s Society Youth Advisory Board, after months of hard work, launched their new Right to Sign campaign, calling for young people to have more opportunities for young people to learn sign language in schools.

They surveyed over 2,000 young people – deaf and hearing – and found that a whopping 92% thought schools should offer British Sign Language (BSL) as a GCSE. They published a report setting out the results in full and the case for action.

And the response from the Government? No.

Yesterday, when asked if the Department for Education in England would encourage exam boards to offer BSL as a GCSE, the Minister, Nick Gibb, said: “At present, there are no plans to introduce any further GCSEs beyond those to which the Government has already committed.”

To our knowledge, this is the first time the Government has ruled out introducing a BSL GCSE since the campaign was launched. It’s a massive disappointment and a real slap in the face for all of the hard work done so far by the Youth Advisory Board.

It’s hard not to feel angry about the response. It’s simply unfair and unjust that BSL, an official language in the UK used by thousands of people, is being treated in a way which implies it has a lower status and importance than other languages already being taught as GCSEs. It could even be seen as discriminatory to deaf people.

We’re not going to be deterred and will keep pressing the Department for Education in England for action – our briefing sets out some of the arguments we’re using. Two members of the Youth Advisory Board will also be asking MPs to support their campaign when they head to party political conferences later this month.

If you want to show your support for our work, please sign the Youth Advisory Board petition. More information about the different ways you can support the campaign can be found on the Buzz website.

 

Growing up in a mainstream school

Emily primary

Emily Meacher (aged 4 years) Policy and Campaigns Support Assistant

Jake’s recent blog got me thinking about my own personal experience at primary school, and how I wasn’t alone in these experiences. And so below are some random reflections of my time at Codicote primary school.

 

I was the only deaf kid in school- children used to say to me ‘why are you death?’ and I would have to try and explain at 6 years old how I am deaf and not actually dead.

I used the deaf card (I started young!) to get out of recorder sessions- I couldn’t bear the noise (can anyone?) and felt elated when I was let off.

Children were curious about how my radio aid worked, so the teacher had the bright idea of sending me out into the playground where everyone watched me. The teacher would say something into the aid but I didn’t understand a word. I felt a bit miffed about being sent out whilst the whole class gawped through the window.

I used to take part in school plays, and didn’t hear or understand any of the songs- I would just move my mouth and pretend to go along with it.

I used to go to my friends’ sleepovers and whilst a lot of the kids were up late chatting in the dark, I would be asleep. I would wake up and see the kids playing with my hearing aids, trying to put them into their ears out of curiosity.

I had a best friend Claire, who I am still best friends with to this day whose mother, told Claire she was worried about her hanging out with me- as her voice had started to get ‘lazy’- and that she was starting to sound like me! Of course, Claire didn’t listen thankfully.

Although there were times when I struggled, overall I received good educational support in school and if it wasn’t for the support there, I don’t think I’d have passed the entrance exam (this has now changed -they no longer have an entrance exam) to get into Mary Hare, secondary school. It was at Mary Hare that I developed my deaf identity.

Since my time working at the National Deaf Children’s Society, it pains me to think that some deaf children out there do not get the same support I had growing up. Some deaf children are coping, rather than thriving. This needs to change – we are working hard to challenge proposals to close resource bases and reduce support – one example being in Manchester. Hazel, our Regional Director for the North West and Sally, our Policy and Campaigns Officer fought hard alongside passionate parents, and in the end we managed to reduce the amount of budget cut to the service. Not only that, but we also managed to save one of the two resource bases under threat. Great news!

If you want to get involved in campaigns like this, then join with me and the Policy and Campaigns team by signing up to our Campaigns Network here: http://www.ndcs.org.uk/help_us/campaigns/campaign_with_us/campaign_network.html

 

Sharing your story to improve the lives of other deaf children

NickTry

Nick Try, Media Relations Officer

When we campaign to improve the lives of deaf children, talk to parents to reassure them that they’re not alone, and fundraise to support our work, having the real life stories of how we have helped deaf children and their families is so important.

Up and down the country we fight cuts to the services that deaf children rely on. We work with schools and hospitals to improve the quality of support they offer. We work with the UK government, as well as the governments in Scotland, Wales and Northern Ireland to demand improvements and changes to policies.

But in order to do this, in order to affect change, and make people with power sit up and listen, it is vital that the voices and the stories of deaf children and their families are heard loud and clear.

So this is why we need you. We are asking you to answer 3 short questions about your experiences, and you can share with us as much or as little as you want.

  • How and why did you get involved with us?

Let us know why you got involved with us. Maybe you are one of the 90% of deaf children’s parents who had no previous experience of deafness.

  • How have we helped you and what impact has working with us had on you?

Maybe you used our Helpline for advice or our online resources, or came to a weekend event.

  • What has your experience been like with other services for deaf children?

Have you had a bad experience with your child at nursery, school, an activity club or even at hospital?

Take a look at the ‘Your Stories’ section of our website, and share your story with us today.