Parliamentary Inquiry into PIP

Sally Etchells, Policy and Campaigns Officer, National Deaf Children’s Society

Have you had a Personal Independence Payment (PIP) assessment? Did you appeal against the decision? Do you have views on what went wrong or what needs to improve? 

If you have, the House of Commons Work and Pensions Select Committee wants to hear from you!

The committee is a powerful group of MPs whose job is to hold the government to account, highlight problems in the system, and make sure the government listens to real people who have been affected by issues such as benefits reform.

The committee has just launched a new inquiry into PIP and Employment Support Allowance (ESA). It is particularly focusing on the assessment stage of the process, but also Mandatory Reconsideration and appeals too.

It is so important that the voices, experiences and situations of deaf young people are heard by the people in power who can actually make a difference.

If you’ve been affected by PIP, we want you to fill out the short form telling MPs exactly what you think is wrong with the system, and how it can be improved for deaf young people.

The deadline for submitting evidence is Friday 10 November. You can find out more about the inquiry and how to submit evidence at this web page:

http://www.parliament.uk/business/committees/committees-a-z/commons-select/work-and-pensions-committee/inquiries/parliament-2017/pip-esa-assessments-17-19/

If you want to provide evidence in a non-written format, you need to contact the committee staff by emailing workpencom@parliament.uk

house of commons

My experience of Labour party conference…

Erin 1

Erin McKay

Hello, I am Erin and I’m from Wiltshire. I have a hearing loss and wear two hearing aids. I am currently doing A Level History, Philosophy and English Literature. I attended the Labour Party Conference and I’d like to tell you a bit about my experience.

On Sunday 24 September I got on the train to Brighton. It took a little under four hours to get there. I was on my way to the Labour Party conference where I had 8 meetings lined up to talk about three campaigns that the NDCS are doing. They are Listen Up to improve children’s audiology services, Right to Sign, putting British Sign Language (BSL) in schools as a GCSE and PIP’d Off, about Personal Independence Payments, and the difficulties that deaf people have in getting them. I talked about the Right to Sign campaign as it was the one I helped create with the last Youth Advisory Board.

On the Monday, Brighton was quite rainy and we arrived at the hotel at around 10am to get ready for our first meeting, it was with Sharon Hodgson, the MP for Sunderland West. She is the Shadow Minister for Public Health. She was really nice and we talked about Listen Up, Right to Sign and PIP.

Erin and Sharon

While we were talking with her, the next MP arrived – Alex Cunningham of Stockton. He was also really nice. He gave us some ideas of what to do with the campaigns and who to talk to about different bits. He agreed to ask his local hospital to sign up to the inspections for Listen Up!

Our next meeting was with Liz Twist who is the new MP for Blaydon. We talked about Listen Up! and Right to Sign. Afterwards we met Stephanie Peacock who is also a new MP, for Barnsley. She agreed to ask her local hospital to be part of the inspection process and we also talked about Right to Sign and having Teachers of the Deaf in Schools. We then had a break for lunch and walked around the exhibitions.

After lunch, we saw Jeremy Corbyn and John McDonnell. I managed to get my picture taken with both of them. Our next meeting was with Dawn Butler, the MP who signed a question in parliament. We talked to her about Right to Sign, and she seemed surprised to see that I couldn’t sign. She had already done most of what we wanted to ask her to do, and she was happy to talk about other things to help our campaigns. Next was Helen Goodman who had done a lot of work already with the National Deaf Children’s Society and she was very happy to help us. We talked about Right to Sign, Listen Up and PIP.

Erin labour

Our last meeting was with Tracy Brabin, who was friends with Jo Cox, who I wrote a bit about loneliness for. We also talked about Listen Up and Right to Sign. I had a really good time and would like to do it again.

The best bit of my day was seeing the taxi drivers showing their support for the Uber ban in London by beeping their horns. It went on for about 20 minutes and was really loud! I also liked meeting all the different MPs. Top tips from me for conference are: to share – talk to the MPs and ask questions if you don’t understand something; they are ordinary people.

Right to Sign campaign update: Minister says no

Ian_Noon

Ian Noon, Head of Policy and Research, National Deaf Children’s Society

Earlier this year, the National Deaf Children’s Society Youth Advisory Board, after months of hard work, launched their new Right to Sign campaign, calling for young people to have more opportunities for young people to learn sign language in schools.

They surveyed over 2,000 young people – deaf and hearing – and found that a whopping 92% thought schools should offer British Sign Language (BSL) as a GCSE. They published a report setting out the results in full and the case for action.

And the response from the Government? No.

Yesterday, when asked if the Department for Education in England would encourage exam boards to offer BSL as a GCSE, the Minister, Nick Gibb, said: “At present, there are no plans to introduce any further GCSEs beyond those to which the Government has already committed.”

To our knowledge, this is the first time the Government has ruled out introducing a BSL GCSE since the campaign was launched. It’s a massive disappointment and a real slap in the face for all of the hard work done so far by the Youth Advisory Board.

It’s hard not to feel angry about the response. It’s simply unfair and unjust that BSL, an official language in the UK used by thousands of people, is being treated in a way which implies it has a lower status and importance than other languages already being taught as GCSEs. It could even be seen as discriminatory to deaf people.

We’re not going to be deterred and will keep pressing the Department for Education in England for action – our briefing sets out some of the arguments we’re using. Two members of the Youth Advisory Board will also be asking MPs to support their campaign when they head to party political conferences later this month.

If you want to show your support for our work, please sign the Youth Advisory Board petition. More information about the different ways you can support the campaign can be found on the Buzz website.

 

Growing up in a mainstream school

Emily primary

Emily Meacher (aged 4 years) Policy and Campaigns Support Assistant

Jake’s recent blog got me thinking about my own personal experience at primary school, and how I wasn’t alone in these experiences. And so below are some random reflections of my time at Codicote primary school.

 

I was the only deaf kid in school- children used to say to me ‘why are you death?’ and I would have to try and explain at 6 years old how I am deaf and not actually dead.

I used the deaf card (I started young!) to get out of recorder sessions- I couldn’t bear the noise (can anyone?) and felt elated when I was let off.

Children were curious about how my radio aid worked, so the teacher had the bright idea of sending me out into the playground where everyone watched me. The teacher would say something into the aid but I didn’t understand a word. I felt a bit miffed about being sent out whilst the whole class gawped through the window.

I used to take part in school plays, and didn’t hear or understand any of the songs- I would just move my mouth and pretend to go along with it.

I used to go to my friends’ sleepovers and whilst a lot of the kids were up late chatting in the dark, I would be asleep. I would wake up and see the kids playing with my hearing aids, trying to put them into their ears out of curiosity.

I had a best friend Claire, who I am still best friends with to this day whose mother, told Claire she was worried about her hanging out with me- as her voice had started to get ‘lazy’- and that she was starting to sound like me! Of course, Claire didn’t listen thankfully.

Although there were times when I struggled, overall I received good educational support in school and if it wasn’t for the support there, I don’t think I’d have passed the entrance exam (this has now changed -they no longer have an entrance exam) to get into Mary Hare, secondary school. It was at Mary Hare that I developed my deaf identity.

Since my time working at the National Deaf Children’s Society, it pains me to think that some deaf children out there do not get the same support I had growing up. Some deaf children are coping, rather than thriving. This needs to change – we are working hard to challenge proposals to close resource bases and reduce support – one example being in Manchester. Hazel, our Regional Director for the North West and Sally, our Policy and Campaigns Officer fought hard alongside passionate parents, and in the end we managed to reduce the amount of budget cut to the service. Not only that, but we also managed to save one of the two resource bases under threat. Great news!

If you want to get involved in campaigns like this, then join with me and the Policy and Campaigns team by signing up to our Campaigns Network here: http://www.ndcs.org.uk/help_us/campaigns/campaign_with_us/campaign_network.html

 

Wales – Ask the Minister to make the right decision this summer!

Debbie Green, Policy & Campaigns Officer Wales

Debbie Thomas, Policy and Campaigns Officer Wales

The Minister for Lifelong Learning is making a big decision this summer – we need your help to persuade him to make

For example, the proposed law would allow families to appeal to tribunal if they were unhappy with a plan… but only for the parts provided by their school or local authority.

If support happens to be paid for by health, even if it is educational support like speech and language therapy, families would have complain to the NHS instead.

Another point is that health bodies would be able to withdraw educational support– even if it is written in a support plan.

Along with other third sector organisations, the National Deaf Children’s Society Cymru has lobbied for the proposed law to toughen up on health boards.

Assembly Members tasked with scrutinising the proposed new law agree with us and have recommended that the draft law be changed so that any support within a learner’s plan is backed up by a family’s right to take a case to tribunal.

Having to use two different complaints systems seems confusing. We want a single robust, consistent and accessible system.

But the Minister has said he is still sitting on the fence. He has stated that he will use the summer to come to a decision about whether or not to make this change to the draft law.

There’s just a couple of weeks to go before the Minister is due to make a decision, please help us urge the Minister to address this important issue before it’s too late.

Our online action means that you can do this in just a few clicks. It only takes a minute so please take action now!

What is the new law?

The Welsh Government’s Additional Learning Needs and Education Tribunal (Wales) Bill is currently working its way through the political passages at the Welsh Assembly. If it successfully passes and becomes law, it will change the way in which support for learners with additional needs is planned for.

The new law would affect deaf children, young people and their families all over Wales.

You can find out more information and access our Q&A on the proposed new law here.

Don’t underestimate the power of taking part in an e-action!

I’m guilty myself of looking at e-actions and wondering whether one more signature or one email from me will really make a difference. But it really does.

The National Deaf Children’s Society has a history of achieving good results through e-actions. Just last year, supporters in Wales took part in an e-action to send a template response to a Welsh Government consultation. As a result, our supporters made up a fabulous 28% of the total responses and the Government report that followed had a specific section outlining our concerns about how its proposals would affect deaf children.

We need your help again to shout out about this very important issue. It only takes a few clicks, so please take action now and then spread the word to your family and friends – the more people who take part the better!

Thank you.

“The support I had growing up… and why we shouldn’t take it for granted”

Jacob Oakes

Jake Oakes, Policy and Campaigns Assistant

We all know that feeling of nervous excitement before our first day at school, a new place or a new job. Over these last few months, I’ve reflected a great deal on my first day at Tilbury Primary School, a total communications unit in a mainstream school in Hull.

My parents often tell me that they noticed an instant overnight change in my confidence and ability to communicate. The ethos of the resource base, ‘that deaf children can achieve anything with the right support’ was key in mine and my deaf class mates’ development.

What I gained from attending Tilbury as a deaf child, was a place where I learned that I was not alone in my deafness, a place where I was encouraged to expand my communication skills. Now I can comfortably place one foot in both the hearing and the deaf world.

Additionally, at Tilbury I received extra support in subjects that I was struggling in. I received speech and language therapy. I was taught how to care for my hearing aids and I also learned about my own identity as a deaf person.

Shortly after arriving at National Deaf Children’s Society, I closely followed colleagues  challenge damaging proposals to close the resource bases in Hull. The base, which Tilbury merged into a few years ago, was under threat of closure.  This meant that future generations of deaf children in Hull,  would not have the same specialist educational support that I had.

It was a real eye-opening moment in which I realised that the support that I received when growing up, the support that enabled me to be the person I am today is not guaranteed for every deaf child. Specialist educational support for deaf children whether that be a resource base, Teachers of the Deaf or technological support cannot be taken for granted.

Due to the incredible work of Alison, Sally, parents and campaigners in Hull, the resource bases at Christopher Pickering and Sirius West will remain open for deaf children and young people in Hull. A fantastic result!

If you want to get involved in campaigns like this and join me with the Policy and Campaigns team at NDCS! Sign up to our Campaigns Network here:

http://www.ndcs.org.uk/help_us/campaigns/campaign_with_us/campaign_network.html

General election 2017- Scotland

Lois-Drake-2-cropped

Lois Drake, Policy and Campaigns Officer, National Deaf Children’s Society

On 18 April 2017, the Prime Minister, Theresa May announced a snap election would take place on 8 June 2017. What will your new MPs in Scotland do to ensure deaf children and young people and their families in your area get the support they need?

There has been positive progress lately in Scotland for deaf young people and their families. The British Sign Language (Scotland) Act 2015 (BSL Act) was passed which marked an historic moment for deaf people across the country.

The implementation of the new laws is now underway with the draft BSL National Plan open for consultation. However work must continue by closing any existing gaps in support that exist for all deaf children and young people and their families.

Some key facts prospective MPs in Scotland should be aware of:-

  • We estimate there are as many as 3850 deaf children in Scotland today and we believe that, with the right support, they can do anything other children can do;
  • Deafness is not a learning disability, but deaf learners consistently do worse than their hearing peers at school;
  • Teachers of the Deaf are vital for many deaf children but there is regional variation in staffing levels and services are being squeezed with half are due to retire within the next 10 to 15 years;
  • The latest Scottish Government data shows that last year 11.8% of deaf learners left school with no qualifications (compared with 2.6% of all pupils) and 38.7% obtained Highers or Advanced Highers (compared with 59.3% of all pupils). This gap in achievement at school goes on to affect deaf young people’s life chances, with 24.7% going onto university compared with 41.3% of those with no additional support needs;
  • The British Sign Language (Scotland) Act 2015, Getting It Right for Every Child (GIRFEC) and a strong focus on educational attainment all have the potential to drive positive outcomes for deaf children and their families;
  • While this progress should be celebrated, there is still much work to be done to ensure that every deaf child in Scotland gets the support they need from birth – with standards of support variable across Scotland, we need MPs who will champion deaf children in their area!
  • The early years are a critical time for deaf children to develop the language and communication skills they need for life, as outlined in our recent report Getting It Right From the Start;

Will your MP be an advocate for deaf children in your area?

Tell them to email us at campaigns.scotland@ndcs.org.uk to request a briefing.