5 Ways A Radio Aid Can Help A Deaf Toddler

Alison Taylor, Senior Information Editor, National Deaf Children’s Society

Compelling evidence shows (see the research) that giving deaf children radio aids in the critical early years, before they start school, can be hugely beneficial for developing their language and supporting communication. But in which everyday situations can they help? Here’s our top five.

1. Family time at home
Whether it’s playing a game together, reading a story before bedtime or talking to your child when they’re in the garden or another room, a radio aid can help deaf children hear their parent’s voice clearly and directly, making them feel connected to their parents and helping build strong relationships.

2. Communicating in the car
When you’re driving you can’t turn to your child to sign, or for them to lip-read you, so being able to communicate effectively is vital when parents are travelling with their child. Radio aids can cut through the background noise of the car engine and the road, allowing you to soothe them if they’re having a tantrum, talk about where you’re going in the car and even play games to make the journey more fun!

3. At nursery or pre-school
Early years settings can be fantastic places for children to get a head start in developing their language and communication before they start school, but they can also be noisy places. Nursery staff can use a radio aid to get a deaf child’s attention to make sure they’re taking part in activities fully and mixing with other children, as well as starting to learn.

4. Staying safe when out and about
You’re at the park and your child is about to walk into the path of a swing, or worse – they let go of your hand and are headed straight for a road – how do you stop them when they can’t hear you calling after them? A radio aid means that your child can hear you at a distance and it will cut through the background noise so you can alert them to danger.

Helen and Alex tell us how a radio aid keeps their three-year-old daughter, Gwen, safe when crossing the road and riding her bike.

5. Actually, whenever they can’t see you
As a parent of a deaf child, you’ll often need to stop what you’re doing and face your child to get their attention and to talk to them, whether you’re out shopping, your child is in a pushchair or in a seat on the back of your bike – whenever they can’t see you. Being deaf aware and creating good conditions for listening are still important, but a radio aid can be a great help for busy parents in those everyday noisy situations that you just can’t control.

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Think radio aids might be right for your child?

Find out more about radio aids and how to get one by downloading our booklet for families How Radio Aids Can Help.

Try out a radio aid for free through our Technology Test Drive service.

Read our Quality Standards for the Use of Personal Radio Aids which sets out a common approach to providing radio aids for deaf children.

Watch our video of a group of mums who tell us how they use a radio aid when out and about with their child.

 

General election 2017: Uninspected audiology services

Beccy Forrow Policy and Campaigns Officer

Beccy Forrow, Policy and Campaigns Adviser

Would you send your child to a school that hadn’t been inspected by Ofsted? Would you ride in a car that didn’t conform to industry safety standards? Would you eat in a restaurant that refused to take part in food hygiene inspections? All questions I’d answer no to.

But this is what is being allowed to happen with children’s audiology services in England. Only 15% of services have been inspected and achieved a high enough standard to become ‘accredited’. This leaves the majority of services uninspected – with deaf children, young people and their families having no idea whether they are attending a great service or one that is poor quality and unsafe.

Considering that an NHS report in 2014 found that one third of audiology services were failing to meet critical NHS quality standards, with no incentive to improve, it’s unlikely that many will now be providing a better service. This matters because hearing is critical to a child’s development of language and learning. Early diagnosis and support reduces the risk of delays in language, educational, social and emotional development. But this support needs to be consistently of good quality.

Earlier this year we created an audiology map so that parents could check if their local service had reached a high enough standard to be accredited. However, of 134 services, 40 have so far refused to take part in the inspection scheme at all. Many others have registered for the scheme but not moved closer to an inspection visit over the course of the last few years.

We’re calling on the next Government to make it compulsory for all children’s audiology services in England to take part in the inspections so that parents can be confident that they are fit for purpose. As the inspections cost money and can be time consuming to prepare for, it’s vital that the Government levels the playing field by making the inspections mandatory for all services. Audiology services for deaf children won’t get better on their own.

If any general election candidates come to your door, be sure to ask them about the quality of children’s audiology services. We’ve got some other questions you might like to ask them on our election web page.

Campaigning: working with professionals in Wales

Debbie Green, Policy & Campaigns Officer Wales

Debbie Thomas, Policy and Campaigns Officer, Wales, National Deaf Children’s Society

Whenever you meet new people, the inevitable conversation starter almost always crops up; “what do you do for a living?” I always take great pride in replying that I work as a campaigner for NDCS Cymru, but there are a lot of misconceptions about what being a campaigner involves.

At a friend’s hen party this weekend, I was asked: “So what does your job involve when you are not cheering and holding a placard?” Well, actually my job hardly involves placards at all!

While placards and demonstrations can be important and effective in some cases, my work is really about positively engaging and working collaboratively with policy makers and professionals. Those working to make new laws or to deliver services for deaf children ultimately want to see new laws and changes to services which are effective and work well. The bulk of my work is about looking at proposed changes and then meeting and working with key decision makers to suggest how these changes could be tweaked to ensure they work for deaf children, young people and their families. I like to think I work with officials rather than against them, pulling out placards and petitions only when raising concerns has not been sufficient and greater action is required.

It is quite fitting that after being asked the placard question, I spent the day with health professionals at a children’s audiology unit. I was part of an audit panel reviewing how the service was meeting standards set by the Welsh Government.

These standards first came into place in 2010 and cover a range of points from waiting times, qualifications and training of audiologists, and ensuring that families receive key information. Every year, audiology sites across Wales are asked to score how well they believe they are meeting each standard and to provide evidence for it. A panel made up of audiology practitioners from other services in Wales and an NDCS representative then review the evidence against the scores given.

For me, this is a great example of how, as a campaigner, you work with and alongside professionals as a critical friend. We support good practice, suggest areas for improvement in the interests of our members, and raise our hands when we feel something is going wrong. Essentially, we have a common aim: to ensure our services for deaf children and their families are up to standard.

Getting it right from the start

ndcs_right_start

Today, we’re launching a new campaign in England, called Right from the Start.

NDCS - Ian Noon, Head of Policy and Research

Ian Noon, Head of Policy and Research

The campaign is celebrating 10 years of newborn hearing screening and how this simple and painless test has literally transformed the lives of thousands of deaf babies.

But whilst screening has made a big difference, there is still much that needs to be done. Once diagnosed as deaf, children and their families need high quality support to ensure they can develop the language and communication skills that are the foundations for success in later life.

Unfortunately, it’s clear that this support is not being provided consistently across the country. We know there’s a massive attainment gap in the early years foundation stage, where children are assessed among a range of early learning goals. We also regularly hear from parents that vital support, such as audiologists, Teachers of the Deaf, support with communication and so on is not being provided when it can have the most impact.

We’re calling on the Government, local authorities and health bodies to work together and make a commitment to ensure high quality support is in place as soon as a child is diagnosed as deaf. Our campaign report explains how the benefits of hearing screening at birth are being lost and what action is needed to ensure deaf children get the right support, right from the start.

Join us in getting it right from the start. We’re asking our campaigners to email our report to their MP and to ask them to take action.

There’s lot of other ways you can support the campaign. Find out more at www.ndcs.org.uk/rightfromthestart.

Have your say on audiology services in Leeds!

Arthur Thomas Campaigns Officer

Arthur Thomas Policy & Campaigns Officer

NDCS are supporting a review of Leeds Audiology Services. If you live in the Leeds then make sure your voice is heard by taking part in a short survey below.

By completing the survey you can help Leeds Audiology Service understand how best to meet the needs of deaf children across Leeds.

Please follow the link below to contribute to the review and have your say:

Complete-the-survey-button-red

We will keep you updated about the progress of the review.

If you have any questions or would like any more information, please contact Carla Rose-Hardman at: Carla.Rose-Hardman@ndcs.org.uk

Liam’s Story: Volunteering with the NDCS Youth Advisory Board

Youth Advisory Board (YAB) volunteer

Liam, Youth Advisory Board (YAB) volunteer

It’s been over a year now since I first joined NDCS’ Youth Advisory Board (YAB) as a volunteer. The role of the YAB is to work closely with the NDCS and help them with their campaigns and projects. After finding out through NDCS’ online website for young people, The Buzz, I decided to apply…

The reason I chose to join the YAB was because I have always liked to voice my opinion on issues that matter to me. My deafness is one of the main things I am passionate about, and being able to share my thoughts and opinions with other like-minded, deaf young people from across the UK seemed like a great opportunity to get involved in.

As well as that, I’m a huge fan of networking and meeting new people. I’ve been to three YAB meetings since March 2014 and I’ve met some great deaf role models, made new contacts and friends for life in my fellow YAB members.

Lastly, I always wanted to learn British Sign Language. Where I live, there isn’t much opportunity to learn, but one year on, I’m proud to say that I am learning more BSL every day. Over one year on from joining the YAB, all of us have achieved some great things.

In terms of campaigns, one YAB member, Zanna, recently took legal action against the Government for not consulting deaf young people about the proposed changes to the Disabled Students’ Allowance, and forced them to delay their plans to cut back support for disabled students (read more about this story here)! Other members of the YAB went to numerous party conferences to meet MPs and ask key questions concerning deaf young people. In particular, the Board contacted the Department for Education to tell them our thoughts on teaching assistants (TAs). We have also contacted the NHS and health commissioners about local audiology services. Overall, the YAB’s campaigning work has been quite impressive!

But that’s not all. We’ve helped the NDCS with designing leaflets about the Local Offer, vision statements, as well as sharing our thoughts on resources that the NDCS creates.

As it’s Volunteers’ Week, now is the perfect time to recommend getting involved in voluntary opportunities like the Youth Advisory Board. Opportunities like these are so important because there’s endless benefits to both you and the organisation you are helping. By seizing opportunities like these, you have the chance to make personal achievements (make new friends, develop new skills and so on), as well as make a key difference to an organisation through giving up your time, sharing your thoughts and helping them with their work.

For deaf young people, I cannot recommend the Youth Advisory Board enough, and for everyone, I thoroughly recommend exploring every voluntary opportunity there is available to you – the possibilities and benefits are endless!

The NHS makes me feel like a drain on resources

Danielle Davies, Deaf Social Work Student

Danielle Davies, Deaf Social Work Student

I am 20 years old, a University student studying for my degree in Social Work. I am severely hard of hearing and have worn two hearing aids since birth. I am not blind to the harsh cuts the NHS has faced over the past few years and I understand we have been in a financial crisis under the previous coalition government. However, I have never in the past 20 years seen these cuts affect the service that I receive from the NHS, especially in audiology, the department I receive my hearing aid support from.

Not until now. I want to tell you about my experience a couple of weeks ago.

A few weeks ago, I made an appointment at my local audiology department at the hospital in my local town. This appointment was to have new moulds fitted for my ‘in the ear’ hearing aids. I went into the consultation room and I explained that I needed some new hearing aid moulds due to the current mould rubbing me severely. The moulds had also become discoloured and not very presentable. No hearing aid user likes to wear yellow looking moulds that look mouldy and unpleasant. It is natural that the moulds discolour and I usually stick it out long enough in till they are that bad they need changing.

The audiologist looked at the fit of the aids in my ear and the hearing aid itself. He stated that there was no need for new ones to be made as they fitted well and I had already had new moulds made a year ago. I explained that 6 months to a year seemed usual to come in for new hearing aid moulds. The audiologist stated that now I am in adult services replacements are every 2 years and not as regularly as they would have been in children’s services.

I did not know how else to respond to this but to sit in silence. I had never been told that was now eligible for new moulds every 2 years and not yearly. I was still confused as I had explained to the audiologist that the moulds had discoloured and rubbed me, regardless of how long ago I had new ones. The audiologist stated that on this one occasion he would fit new moulds.

After that the audiologist asked ‘do you know how much hearing aids moulds cost?’ to which I replied I didn’t know. The audiologist stated ‘they cost between £15 to £20 for the moulds and this is very expensive, the money comes out of adult services budgets’. What was going through my head was ‘are you trying to make me feel bad for coming to my appointment and asking for new moulds because my current ones have left me in discomfort’? I was made to feel like a drain on NHS resources and that I was using money unnecessarily, however this was not the case.

Following the moulds being made, the audiologist explained that I would be telephoned to come in and have an appointment to have them fitted. However, as I have fitted my own hearing aids for the past few years I asked if the moulds could be posted instead. The audiologist stated that we do not post them as ‘that costs money and it isn’t cheap for postage’. I pointed out that for years now I have had them sent in the post, but agreed I could come in and have them fitted if they weren’t going to post them. The audiologist stated we only post them to our university students, as I was a student living away, the audiologist agreed to post them on this occasion.

Again I felt like I had to justify myself to the audiologist.

It was also clear that my records weren’t read and my hearing loss understood, because when the moulds were being made and left to harden in my ear, the audiologist started to talk to me. For people who don’t know, to make new moulds the hearing aids have to be taken out for a few minutes. You wait patiently until the solution is hardened and ready to be taken out of the ear and you put your hearing aids back in.

As a professional in audiology I would expect the audiologist to have read my records and check my level of hearing before he tried to communicate with me verbally when I did not have my hearing aids in. I had no idea what was said but nodded and pretended I could hear him – I felt devalued.

I was born with a hearing loss due to sensorineural nerve damage but I have never experienced this feeling in the 20 years I have been using the services. I was not advocated and was alone on this visit. The reason I wanted to write my story was because I want people to understand that you should never feel like you are a burden, scrounger or drain on the NHS.

I will be qualified as a social worker in 12 months and will be paying taxes in which will help fund care that I need. I feel that no one who is hard of hearing or deaf should be spoken to about budgets, cuts and costs on their appointments. I walked away from that appointment wanting to use private services. I want to be proud of using NHS services – I have received extraordinary support for many years from some great audiologists and in writing this I do not want to undermine their amazing work and efforts.

Finally, I completely understand why postage services are being cut and why moulds need to be changed every 2 years and not more regularly. However, it is important that every deaf and hard of hearing patient has these changes explained. I walked out of that appointment feeling undeserving of new hearing aid moulds, I felt that I was using NHS budgets unnecessarily and I did not feel proud to be deaf.

It wasn’t in till I got home and explained this to my mother and older sister, who were appalled at my experience, that it made me want to make other people feel empowered. I want all audiologists to be approachable and provide advice in a manner of professionalism, to understand their patients hearing and to never let them walk out feeling devalued.

Please take a message from this…be proud of who you are and your disability, tell your story, because just writing this made me feel amazing to have spoken out.