I recently interviewed Caroline and Anthony, members of our campaigns network and also parents to three children, Emily, Jack and Thomas. Thomas is ten months old and profoundly deaf. He also has a very rare condition called CHARGE syndrome which means he has additional needs. I spoke to Caroline and Anthony about why being a part of the campaigns network is important to them.
Why did you join the campaigns network? “We need to defend the services that are so vital to Thomas, our family and other deaf children. Thomas cannot tell people himself how much he needs, enjoys or how much he gets from the service so it is up to us to be his voice and to make sure that it is heard”.
What have you recently campaigned on? “We found out that Manchester City Council was planning to cut the Sensory Support Service for deaf children so, given how much we rely on this service, we knew we couldn’t stand by and let them do this without a fight.”
Update: With the help of many parents and local campaigners, we managed to reduce the planned cuts in Manchester. We will now be working closely with the local authority to ensure deaf children in Manchester continue to get the right support.
What kind of campaigning tactics did you use? “We responded to the council’s consultation and also wrote a letter to the council outlining how our whole family relies on the service. We also wrote to our local MP about the cuts and asked him to reject them on our behalf. He wrote to the council and supported us. Having your local MP on board really does make a difference.”
What do you get from NDCS? “It is great that we can contact NDCS directly for advice or to answer any questions we have. They have travelled over to Manchester to meet with us and to gather feedback on how the changes affect us”.
Why should other people sign up to the network? “It is up to parents to stand up and fight for their children. We cannot allow our deaf children to be disadvantaged either now or in the future as cuts will affect children perpetually. We must all do whatever we can.”
Our campaigns network is made up of around 7,000 people who are passionate about campaigning to protect valuable services for deaf children and young people. The network is open to anyone and is completely free to join. Our campaigns network members take action on local and national levels to make sure services for deaf children are defended. Join the campaigns network today to be the first to find out about campaign actions in your area and to receive regular updates from the team: