In 1994, my parents made the biggest decision of my life. They decided I would have a bone anchored hearing aid (Baha). Today, I sit here with the biggest smile on my face and say it was the best decision they ever made for me.
I was born with Treacher Collins Syndrome and a moderate hearing loss. At 2 years old, after much pushing from my parents, I was diagnosed with a hearing loss and fitted with the behind-the-ear hearing aids. Although these worked well, they weren’t the best for me. When I was fitted my Baha, my parents noticed a huge difference and they were very happy with the results.
However, it wasn’t all plain sailing. First they had to fight for me to get the Baha. Then after I started school, they had to push for my educational support. It was a fight to maintain the support I received during the later years of school such as a fab Teacher of the Deaf and to ensure that I had a Statement of Special Educational Need. It was one battle after another, but they never stopped believing in my ability and fought for me every step of the way.
I’m pleased to say all their efforts were worth it. Currently, I work as a Membership Assistant at NDCS and I couldn’t be happier. To be a part of a charity that helps to ensure all deaf children can reach their full potential fills me with gratitude. I’m often asked why I work for NDCS. My reply is simple. It fills me with great horror to see that some children are not getting the same opportunities as I did and I must be part of a team that does something to change this.
That’s why I joined the NDCS Campaigns Network. I get all the latest information about their campaigns and advice about how I can support their work and raise awareness. So, why not join me and make a difference for deaf young people?